Information Ethics

The stresses of 24 hour creative work: How much would Aristotle blog?

by Anders Sandberg
April 8, 2008

New York Times writes about the stressful
lifestyle of for-pay bloggers. The bloggers get rewarded for being
prolific and quick to comment, but since the Internet never sleeps they feel a
pressure not to sleep either. The result is physical and emotional stress that
never lets up – especially since often the home is also their workplace. This
is just one example of the high stresses of many new creative class occupations. Is there any way out of knowledge-economy workaholism?

PatientsLikeMe.com

by Tom Douglas
March 27, 2008

The New York Times recently published a feature article on a website called PatientsLikeMe. This is an online community like facebook or MySpace, but with a medical twist. The members have serious medical conditions, like Parkinson’s disease, multiple sclerosis, or HIV, and they use site to post quantitative information about their treatment and symptoms. The site then presents this information for all to see. For example, users can search the website for a drug and then view bar graphs illustrating reasons that members take the drug, the distribution of dosages, length of treatment, reasons for stopping treatment, and patient ratings of the treatment. Individual profiles also show line graphs plotting disease progression and showing major treatment events. The aim is to offer patients the information required to better tailor their own treatment.

It’s easy to think of both risks and benefits of this sort of website.

The Rogue Senator and the Protection of Genetic Information

by Mark Sheehan
February 14, 2008

The editors of Nature have today called for the US Senate to bypass Senator Tom Coburn’s (Republican, Oklahoma ) ‘hold’ the Genetic Information Non-discrimination Bill. The Bill, if enacted “would protect people from being discriminated against by health insurers or employers on the basis of their genetic information” but Senator Coburn has used a procedural manoeuvre called a “hold” to prevent it from coming to a vote in the Senate. In their editorial the editors suggest that by putting a hold on this Bill, the senator from Oklahoma is preventing the enormous research and clinical progress from continuing and further developing the era of personalised medicine.

I’m Not a Number; I’m a Human Being: RFID Tags and Our Personas

by Anders Sandberg
January 21, 2008

Swedish athletes Carolina Klüft and Stefan Holm (currently reigning Olympic champions in the heptathlon and high-jump events) recently suggested that elite athletes might have an obligation to implant chips or carry GPS transmitters in order to allow anti-doping organisations to track them. Meanwhile medical researchers debate whether patients should be tagged implanted chips for identification purposes. While such suggestions almost universally provoke a shudder and remarks about Orwell’s 1984 other people voluntarily chip themselves: some to access nightclubs, others to "hack" themselves. We might resist some privacy invasions, but eagerly invite others. Should we just get it over with and let the government tag us all?

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