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Catholic bishops condemn France’s first ‘bebe medicament’

Last month, doctors in France announced the arrival of the country’s first so-called ‘saviour sibling’. Born to parents of Turkish origin, Umut Talha (Turkish for ‘our hope’) was conceived through in vitro fertilisation (IVF) using preimplantation genetic diagnosis (PGD). This technique, in conjunction with Human Leukocyte Antigen (HLA) typing, commonly known as ‘tissue-typing’, has enabled families to have a child – a ‘saviour sibling’ – that is capable of donating life-saving tissue (usually umbilical cord material) to an existing sick sibling. Umut’s parents approached the hospital in Clamart a year ago requesting tissue-typing PGD. Their two existing children had beta thalassaemia, an inherited blood disorder that requires monthly blood transfusions.

An embryo was screened and genetically selected from an original group of twelve embryos to ensure that it was both free of the disorder and a tissue match for one of the existing siblings. The resulting saviour sibling, Umut, did not have thalassaemia, and cells from his discarded umbilical cord will be used to cure his older sister, now aged two, and her monthly blood transfusions will be discontinued. Umut’s parents plan to return to Clamart to undergo the same procedure to cure their other child, Umut’s four-year-old brother.  

Saviour sibling selection is nothing new. Read More »Catholic bishops condemn France’s first ‘bebe medicament’

Galliano, Westboro Baptists, and the question of free speech

Despite the protestations of Albert Sydner, the father of a young soldier killed in Iraq, the American Supreme Court has ruled in favour of the Westboro Baptist’s right to picket military funerals. The religious group has demonstrated at 200 funerals, sporting events, and concerts, claiming that the wars in Iraq and Afghanistan are god’s way of punishing America for tolerating homosexuality. Their protests are quiet. There is no personal abuse, no threats of force either, and they operate 1,000 feet from the church in which the funeral takes place, under police supervision. They merely hold signs with offensive messages such as “God Hates You” and “God Hates Fags”. No matter how morally outrageous these messages are, the Court has been clear that the picketing is protected by the First Amendment and, therefore, should be allowed. Samuel Alito was the only judge who dissented in the Supreme Court decision. He argued that a commitment to free speech does not license verbal assault. I found myself sharing Alito’s intuitions and that, considering his conservative and libertarian views, put me in an uncomfortable position. So, I asked myself, why do I oppose the Court’s decision? Another piece of news helped me to think through this issue. While the Westboro Baptists were celebrating the verdict, John Galliano was fired for declaring his admiration for Hitler and he will now be prosecuted. These two cases can be compared in several respects, but I will point to two.Read More »Galliano, Westboro Baptists, and the question of free speech

Should Conservative Christians be Allowed to Care for Our Children?

Eunice and Owen Johns are Christian Pentecostalists who believe that sexual relations other than those within marriage between one man and one woman are morally wrong. They also want to be foster parents.

Should they be allowed to care for other people’s children? Derby city council have been reluctant to allow this, and the High Court has recently agreed with the council that the attitudes of potential foster carers to sexuality are a relevant legal consideration. Considering the moral question whether they should be allowed to foster – that is, the question of what the law ought to say about cases like this – my colleague Michelle Hutchinson cautiously says it all depends on the risks of harm to the child, and the risks of harm to society as a whole, but implies that her sympathies lie with the council. With one proviso, I believe we should allow Eunice and Owen Johns to foster – because to do anything else would be illiberal.

Read More »Should Conservative Christians be Allowed to Care for Our Children?

Who should be allowed to foster?

A Christian couple have been blocked in their attempt to foster children this week. Eunice and Owen Johns had applied to Court to prevent Derby city council from continuously stalling their application to foster children. The council was doing so because the couple are Pentecostal Christians who hold “strong views on homosexuality, stating that it is ‘against God’s laws and morals’”. The court refused to rule on the matter, effectively allowing the council to prevent the Johns from fostering. Should conservative Christians be allowed to foster children?

Read More »Who should be allowed to foster?

Ethical Lessons From Locked-In Syndrome: What Is a Living Hell?

A recent important study by Stephen Laureys and colleagueson what it is like to be to experience severe brain damage has been widely reported. (eg, http://abcnews.go.com/Health/Wellness/locked-patients-life/story?id=12984627). Laureys and colleagues surveyed the views of people with “locked-in” syndrome. This syndrome, which typically occurs after certain kinds of stroke, results in the person unable to move his arms or legs and unable to speak. In some cases, they can move their eyes and communicate through eye movements but in other cases, the eyes are paralysed. They are awake and aware.

Many people would think this is a living hell, imprisoned in one’s own body, with limited if any means of communication. But Laureys et al found differently when they actually asked patients who were in this condition. According to the ABC,

“More than half of patients coping with a form of nearly complete paralysis called locked-in syndrome indicated — through eye blinks in some cases — that they were getting some satisfaction in life, though 8 percent had often thought of suicide.

“Among 65 patients who had developed the syndrome a median of eight years previously, only 18 characterized their lives as “somewhat on the bad side” or worse… Seventeen patients indicated that they felt as well, or almost as well, as in their happiest times before becoming locked-in. Another 21 gave their overall quality of life lesser but still positive marks.”

So what can we learn from this study?Read More »Ethical Lessons From Locked-In Syndrome: What Is a Living Hell?

Herbal Placebos

The seven-year period within which member states must implement the EU directive on herbal medicine ends next month. In the UK, the government last week announced that herbalists will now be regulated by the Health Professionals Council (HPC). The HPC is the body that currently supervises a number of health professions including paramedics and physiotherapists. The effect of the decision has been to trigger concerns, particularly from medical professionals, that the move will confer legitimacy on treatments with no proven benefit. But if the government is going to permit herbal medicine, then there are in fact grounds to make it as plausibly medical as possible.

Read More »Herbal Placebos

Civil Partnership, Religion and the BNP

The government is making plans to lift the ban on gay partnership ceremonies in religious buildings. Among the first to apply to perform such ceremonies are expected to be Quakers, and Liberal Jews. However, it is apparently “not clear whether the proposals will suggest that civil ceremonies in religious surroundings could incorporate elements such as hymns or Bible readings”. What justification could there be for preventing the incorporation of such elements?

Read More »Civil Partnership, Religion and the BNP

Will the protection of animals be left to corporations?

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There is a pair of interesting stories connected to animal ethics in the media at the moment. One is an exposé of bad practices that persist in many British abattoirs — a mix of cruelty and sloppiness that is against the rules but happens regardless. The other is an exposé on the bad effects of EU fishery laws. In order to stop overfishing, boats are not allowed to return to harbour with more than a certain amount of fish, and must have none at all of certain species.  The problem is that this leads to perverse behaviour among the fishing boats: the amount of fish caught is always a bit random and they want to get as many as possible, so they often catch too many and dump the excess overboard (which are typically dead by that point). We hear that this results in ‘as much as two-thirds of the fish caught being thrown back in the water’ (and I’d love to know what the overall average is).

Read More »Will the protection of animals be left to corporations?

How to feed people dioxin and get away with it

Earlier this month German authorities closed around 4,700 farms following the discovery that pigs and poultry had been given feed contaminated with dioxins, which are thought to be among the most carcinogenic environmental pollutants. Yesterday Russia banned the import of untested pork products produced in Germany after 1 November 2010. This follows earlier import bans on some German food products in Slovakia, China, Belarus and South Korea.

Evidently the North German firm Harles und Jentzsch added a contaminated oil, possibly intended for industrial paper production, to an ingredient for animal feed that was then sold to 25 different feed manufacturers. Tests showed that the oil contained dioxin at 77 times the permitted level. Around 150,000 tons of feed incorporating this oil was reportedly fed to poultry and pigs across Germany, and affected eggs were sold in Germany, The Netherlands and the UK.

Internal tests at the Harles und Jentzsch plant revealed elevated dioxin levels in feed ingredients as early as March last year, suggesting the possibility that the human food supply may have been contaminated for months. And of course, this is nothing new. There were similar dioxin scandals in Ireland and Italy in 2008, Belgium in 1999 and 2006, and Germany in 2003.

How can such practices go unnoticed so often and for so long?

Read More »How to feed people dioxin and get away with it

Stop that painting!

A painting thought to be by Peter Paul Rubens has been barred from export this week. The ban on selling it to a foreign buyer lasts until March, with the possibility of an extension, and is intended to give British museums a chance to raise the money to buy it. The committee which advises the government on which pieces of art should be barred from export must find a piece to be of high quality and to have a significant British connection, if it is to be barred. The British connection which allows this painting to qualify is that it has a wax seal on the back showing that it was in a British collection in the 1840s (it also has one showing it was in Venice in the early 1800s). Given that connection, how could Britain justify preventing the export of this painting?Read More »Stop that painting!