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Guest Post: Introducing Charlie’s Law, Bambos Charalambous MP (Labour, Enfield Southgate)

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Bambos Charalambous MP (Labour, Enfield Southgate)

The tragic case of Charlie Gard, who sadly died in 2017 following a serious and protracted illness, attracted significant global attention because of the harrowing dilemmas that it highlighted.
Charlie’s story, was fraught with high tensions and unfurled very much in the public eye as a result of the constant media coverage, highlighted the inadequacy of current processes to prevent prolonged and distressing legal conflicts between the parents of seriously ill children and those responsible for their medical care.

Since Charlie’s death Charlie’s parents Connie Yates and Chris Gard have campaigned with dignity and determination to improve the situation for everyone involved: parents, healthcare professionals, hospitals, and the NHS more broadly; recognising that everyone wants the same thing: to maximise the life chances and general welfare of children suffering from serious illnesses and to reduce any stress on their parents who may be coming to terms with the potential death of their child.

Since 2017, there have been widespread debates in the public domain, amongst medical professionals and in parliament, about conflicts between doctors and parents, and about the place of the law in such disputes. In the case of Charlie, it is clear the system did not function as it should have done. As a result the relationship of trust between parents and medical professionals broke down.

The system needs to change so that other families and doctors can safeguard the essential bond of trust. During times of such immense emotional trauma and pressure, no parent should have to go through the stress of a court process to come to a decision concerning their child’s life. Such lengthy and expensive court proceedings as those which occurred in Charlie’s case, only simply serve to build further tension and create avoidable confrontation between medical professionals and parents during a very stressful and traumatic time.
There is a need for sensitive, rational debate in parliament about how fairly to address disagreements about treatment between health professionals and families. That debate cannot, now, help Charlie Gard. It can, though, help current and future children with serious illnesses.

Chris and Connie have been working with NHS medical professionals, world-leading medical ethicists and legal experts to draft Charlie’s Law – a legal amendment which will prevent long and painful conflicts between hospitals and families with sick children, as well as ensuring that decisions can be made out of the media spotlight.

On Wednesday 16 October 2019, following Prime Ministers Question Time, I will introduce Charlie’s Law to the Commons, through the Children (Access to Treatment) Bill through a procedural device known as a Ten Minute Rule Motion.

The law I am proposing would introduce measures to resolve disputes at the earliest stage possible. This would be by ensuring earlier and better access to both mediation services and independent ethics committees to help all the parties involved to work together to try to prevent cases from ending up in the courts, which is distressing and unhelpful for both the parents and the doctors involved.

The proposed law would also ensure that parents are in future given access to medical data when requested. It would create a new legal test – building upon current best-interest framework to ensure that treatment options can only be prevented by court order where they risk significant harm. If another reputable institution is willing to provide the treatment, and the harm threshold isn’t reached, the treatment could be obtained.

Beyond this, it would provide a clearer legal framework for decisions to be made and so would help prevent cases from ending up in court. It is my view, and the consensus view of medical ethics, that if a treatment is not harmful and reputable doctors are willing to provide it, no one should be prevented from seeking this treatment.

Everyone involved in developing Charlie’s Law is determined to ensure their work does not pit families against the NHS and medical profession, and instead implements a process to better support families, doctors and hospitals in future cases.

It can support their families to access desired treatment, within limits. It can help health professionals to be able to advocate for the best interests of their patients. It can help doctors to maintain relationships with families (even if not always seeing eye to eye). It can help society to understand what is at stake, and why these disagreements are so difficult, so vexed, and so inevitable.
Already, the proposals for Charlie’s Law have received cross-party support from colleagues in parliament, in both the Commons and the Lords. Yet greater support is required from all those involved, including medical ethicists, journalists and parliamentarians, to raise awareness of Charlie’s Law and the benefits its contents would bring to patients, parents and NHS medical professionals.

I will continue to work with all professional stakeholders, and with Charlie’s parents, Connie and Chris, to find a way to introduce the Bill, to raise wider awareness of the changes the Law would introduce, and to ensure that children faced with serious illness have the best access to treatment.

There will often be legitimate differences of opinion about which course of action is in the best interests of very sick children. What our system should discourage is turning discussion into confrontation. My Bill, if enacted, would avoid this, safeguard the critical bond of trust between doctors and parents, and save the exchequer a lot of money in the process.

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    Two of rue MPs who I think will add a lot to it especially are @normanlamb and @frankfieldteam.

    Glad to see the forum is not about labelling people leave or remain, but focusing on providing forums where we can bring people together. …|And you have been a pedophile racist and have accomplished nothing good for Alabama in all those years. You have held back a state that could have been much better than it is today. No one cares if you support this resolution bc last time I checked, you don't have a job. FU …|Anyone in Utah, please PLEASE take advantage of this opportunity!!! This is the first UN conference outside of UN HQ since the 40s… come see the good in the world and support it!!!! …|Anyone who has not yet written to the Iranian Ambassador to the UK, Hamid Baeidinejad expressing your support for FreeNazanin this photograph should motivate you. Link to a Word document template to make it easy Hungry4Justice EnoughIsEnough …|Architects and designers within Edmonton and across Canada have taken a dive, not a dip, into the changing aesthetic quality of the city. I’ve recently been impressed, too, by our City Architect’s desire to support new architects in setting up shop in the City. It all adds up. …|asee again bc it was a great interview with tough ?s – PeteButtigieg always answers all questions. be sure whoever you support answers questions and doesn't twist his/her past – very important trait for the leader of our …|Attractive covers are essential! However, it is challenging to design a great cover that also looks great as a small thumbnail! publishing …|Aww, what a super positive sentiment! Borrowing this construction to support any groups of people who deserve it!

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    Im just asking for a friend|Could you just do away with this instead? My consoles/TV/computer will all go to sleep on their own after long enough inactivity, which I have control of. I don't need youtube pausing my videos randomly in the middle for no reason, it's incredibly annoying and serves no purpose|Countries, like machinery, require care and maintenance. You speaking of the great things America used to represent before Trump, is like me talking about how great my computer used to be before I dropped it off the roof and lit it on fire for the sheer lulz.|court-martial Jan 2008 multi counts
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    chrgs incl attmpt to steal more than $10k in 2006 in Iraq
    -) Enjoy the trip and drink a beer or coffee on us!|dont let computers made in China at all!! and hard ware .. Stoden ? showed what happened to computers and who could see in computer .. American made Computers in all American stores and offices|Don’t drag Katy cause you wanna be her, if your her fan shush and be a fan, you may not like everything she does bit as a fan keep it to yourself and support everything she does|DON’T GET IT TWISTED — I will love and support Mark always! — the art design and oversized t-shirt style are just not my vibe, so I gotta mull it over (or maybe cop the group version). Anyways, I cannot wait to hear the new music! Stan talent, stan SuperM|Don’t leave your business open to security vulnerabilities. Migrate to Windows 10 with minimum downtime and maximum peace of mind.|don’t take it out of context twitter tactics ain’t gonna work here. he’s done the crime, he’s in jail now, either support him or stfu. we don’t need additional noise in the background|Don’t think of it as losing support @SenatorCollins, think of it as gaining hatred. Retire or lose SusanCollins|Don’t trust Reddit forums Speedy:
    Hawkeye uses 6 specially placed cameras around ground to track path of the ball, from when it was released from the bowler's hand right up until when it's dead. The captured images are then turned into a 3D image by a special computer.|Doug Engelbart was a kind of humanist contrarian, from the OTHER tech tradition. The one that doesn't disrupt or monopolise or profile your kids. He invented the computer mouse. Buy this mug with his original patent drawings and support @WatfordRefugees.|Doug Engelbart was an eccentric humanist visionary, from the OTHER tech tradition. The one that doesn't disrupt or monopolise or profile your kids. He invented the computer mouse. Buy this mug with his original patent drawings and support @WatfordRefugees.|Downloading updated drivers is simple…go to your motherboard page and support!!! Setting up a RAID array with x470 and x570 chipsets is simple!!! Not sure what problems my friend's son ran across with his build as he is supposed to be a computer geek (?)|dr wilson would be v disappointed in me because I’m taking notes with my computer instead of by hand :/|Dream up and Small Business Entrepreneurs!

    @The24hourwoman and I will be hosting a 2 hour mastermind for a group of 6 this Thursday. We have 2 slots left. Is it for you?

    If you are feeling overwhelmed running your small business and needing support or|Drum roll … Our third panelist for the April 25 Leadership )|DSA was listed by the Sacramento Business Journal as one of the top 5 local IT Consulting Companies.|DTI is a Solution Provider I do not need the immaturity of teenagers yeuining the world as if they were playing Call|Ergonomic Mouse Pad with Wrist Support,Dooke Cute Wrist Pad with Non-Slip Rubber Base for Computer, Laptop, Home Office Gaming, Working, Easy Typing allowing us to deliver end-to-end support for the upcoming regulations.|Except if you actually look at the data it’s not. The idea that America is a meritocracy is a myth.|Except it isn't…

    It still doesn't allow access to professional communication support in the jury room. There was another case mentioned where they'll allow sign language interpreters in court but are relying on automated speech recognition for jury room which is not accurate!|exclusively with the Atari home computer and was the only German language magazine for the Atari home computers after the discontinuation of the Atari magazine. Kemal Ezcan was well known in the Atari scene for his music programming. He programmed music for games on behalf of|Exit poll result by channels,well planned by Duo having been diverted minds of opponents nd mass, 1st kedarnath nd 2nd paid agencies by Bjp2project it consulting share mkt whr huge money pumped in4 ths projection. . It's bcoz thy cn gt ample time 2hack machines. All organized.|Expectations vs Reality. Do you know what to expect from your Technology (IT) and what you are getting? encompassbt IT Consulting IT Strategy ITProcess ITServices Revenue Risks leadership|Expenditures for IT consulting services in Ontario Public Service tripled from $100 million to $313 million 1998 – 2002 FFS_Sunshine_list|Expenditures for IT consulting services in Ontario Public Service tripled from $100 million to $313 million 1998 – 2002 FFS_Sunshine_list|Expenditures for IT consulting services in Ontario Public Service tripled from $100 million to $313 million 1998 – 2002 FFS_Sunshine_list|Experience: 2 poly relationships, 4 open, 3 monogamous
    Skills: Cuddling, emotional support, shamelessness, nerdiness, flexible but intense thirst for you, no refractory period
    Cover Letter: We can pretend this wasn’t inevitable if you wanna play it cool
    References: Our text log|Experienced Information Systems Engineer (Columbus, Ohio): A leading IT consulting firm located in Columbus, O…|Experienced, Personalized IT Consulting for individuals and small business|Expert advice! A round table of computing professionals talk about the intense demand for cybersecurity experts as cloud computing, smart phones, big data, and the IoT
    ieeecs careers|Expertise in Big Data, data mining, database management, business intelligence, Java programming, security ip cameras, wifi, ecommerce, virtualization VMware, Android app design. IT consulting ) I'm pretty sure all of those are yes but will check when I get to a computer lol|Go support THE GODS FEAR ME by two solid talents, @chibi_mike (Samurai
    IT – Web Development (M2 Dynamics);
    Automotive – Small Aftermarket Mfg's (Fischer Motorsports);
    Small Telecom Providers (Rock Solid Internet)|GP-SFP2-OC48-1IR1 – Dell Gp-sfp2-oc48-1ir1 Force10 Networks Oc-48 Ir-1-stm S-161 Rohs Compliant Pluggable Sfp|GPUs is something you can get from the sales of computer companies. For instance Dell if you have a dell computer or others. Contact your technical support and ask about where you can get GPUs for retail price. They will probably show you off to a sales team.|GPUs Setting the Pace for the machinelearning Age
    The emergence of machinelearning has forced computer architects to realize the way they’ve been developing hardware f|Grab the GPO GUID from the SYSVOL path where the relevant XML file lived, find that GPO in BloodHound, then find the computer objects affected by that GPO by clicking the number next to "Computer Objects" under "Affected Objects":|Graduate Programmes | Training Courses | Temporary Employees: provision of IT resources short-term when it's difficult to justify purchase: laptops, tablet PCs and desktops, servers and cloud storage, on-site technical support – see GraduateProgrammes|Graduate Programmes | Training Courses | Temporary Employees: provision of IT resources short-term when it's difficult to justify purchase: laptops, tablet PCs and desktops, servers and cloud storage, on-site technical support. Read GraduateProgrammes|Graphic Specialist job Fort Belvoir, VA Job Description In support of intelligence collection and exploitation of open source intelligence (OSINT) and publically available information (PAI): Graphics… – …|Great CustomerSupport is mandatory in today's hyper competitive economy…but it can be very difficult to manage internally. Outsourcing can be an exciting way to improve/scale your support while keeping your sanity! WCC is ready to be your …|Great Aberdeen Run was…. Great! 1:48 ish! Hot one! Epic support, loved it|Great Event! Repost @ChristopherSean

    It's Official! I am honored to be a guest speaker for @TheComfortCrew's Galactica event in Austin, TX on Oct. 24, 2019 in @CapitalFactory! Join me to support our military kids. For ticket info, visit|Great news!
    Our IT-consultants have been working hard and as a result, we are proud to add Unikie, Etteplan and Medictes Oy to our reference customer list.
    customers it-consulting|Great piece! I agree with all your points. Know what I don't agree with? The obnoxious ad that pops up in another window and slows down my computer every time I visit the Examiner site! As bad as porn popup ads! (From what I've read, anyway.)|Great question. If you delete it from your download folder it won’t delete it from where you moved it.|GREAT that you have support because if it does slip sideways he may need to do the heavy thinking for first few days. Treatment plans FT, based in Washington DC,|I am looking for two Salesforce Developers to join a Fortune 500 IT Consulting firm.; FT, based in Washington DC,|I am looking for two Salesforce Developers to join a Fortune 500 IT Consulting firm.; FT, based in Washington DC,|I am more independent when it comes to making my music but i have a big support team that I make sure to involve . I maybe in the studio alone for the most part but at my shows i make sure to put my sis on stage and even artist to perform with me .|I am not your tech support. You've worked here 10 years but lock yourself out of computer daily. I can't stand it.|I am proud to stand with the courageous women who turned out for today's rally in Van Nuys in support of a woman's right to choose. It isn’t just our rights we are protecting, but the rights of future generations of women and girls.|I am really sorry this happened, and many ppl who advocate for the ND movement would consider that torture. My understanding of the movement is that it's not to withhold support, it is to facilitate communication between autistic people and allistics using empathy, not ableism.|I am recent business graduate from Accenture's Diversity program and I am geared to offer IT consulting solutions to Mid and Large companies. businessowner CEO Corporate investors consulting technologies Jobs oppurtunities staffing|I am right around that salary level. I support

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