Skip to content

Children and Families

Knowing is half the battle: preconception screening

In a recently released report the UK Human Genetics Commission said there are “no specific social, ethical or legal principles” against preconception screening. If a couple may benefit from it, testing should be available so they can make informed choices. Information about this kind of testing should also be made widely available in the health system (and in school). The responses in the news have been along predictable lines, with critics warning that this is a modern version of eugenics or that it would lead to some people being stigmatized.

Read More »Knowing is half the battle: preconception screening

Catholic bishops condemn France’s first ‘bebe medicament’

Last month, doctors in France announced the arrival of the country’s first so-called ‘saviour sibling’. Born to parents of Turkish origin, Umut Talha (Turkish for ‘our hope’) was conceived through in vitro fertilisation (IVF) using preimplantation genetic diagnosis (PGD). This technique, in conjunction with Human Leukocyte Antigen (HLA) typing, commonly known as ‘tissue-typing’, has enabled families to have a child – a ‘saviour sibling’ – that is capable of donating life-saving tissue (usually umbilical cord material) to an existing sick sibling. Umut’s parents approached the hospital in Clamart a year ago requesting tissue-typing PGD. Their two existing children had beta thalassaemia, an inherited blood disorder that requires monthly blood transfusions.

An embryo was screened and genetically selected from an original group of twelve embryos to ensure that it was both free of the disorder and a tissue match for one of the existing siblings. The resulting saviour sibling, Umut, did not have thalassaemia, and cells from his discarded umbilical cord will be used to cure his older sister, now aged two, and her monthly blood transfusions will be discontinued. Umut’s parents plan to return to Clamart to undergo the same procedure to cure their other child, Umut’s four-year-old brother.  

Saviour sibling selection is nothing new. Read More »Catholic bishops condemn France’s first ‘bebe medicament’

The patient vanishes

by Dominic Wilkinson

If a patient’s family refuse to allow withdrawal of breathing machines should doctors provide long-term support in an intensive care unit for a patient who is clinically brain dead? Should doctors provide heart-lung bypass (ECMO) for a child with anencephaly? Should doctors perform a tracheostomy and provide a long-term breathing machine for a patient in a documented persistent vegetative state?Read More »The patient vanishes

Should Conservative Christians be Allowed to Care for Our Children?

Eunice and Owen Johns are Christian Pentecostalists who believe that sexual relations other than those within marriage between one man and one woman are morally wrong. They also want to be foster parents.

Should they be allowed to care for other people’s children? Derby city council have been reluctant to allow this, and the High Court has recently agreed with the council that the attitudes of potential foster carers to sexuality are a relevant legal consideration. Considering the moral question whether they should be allowed to foster – that is, the question of what the law ought to say about cases like this – my colleague Michelle Hutchinson cautiously says it all depends on the risks of harm to the child, and the risks of harm to society as a whole, but implies that her sympathies lie with the council. With one proviso, I believe we should allow Eunice and Owen Johns to foster – because to do anything else would be illiberal.

Read More »Should Conservative Christians be Allowed to Care for Our Children?

Who should be allowed to foster?

A Christian couple have been blocked in their attempt to foster children this week. Eunice and Owen Johns had applied to Court to prevent Derby city council from continuously stalling their application to foster children. The council was doing so because the couple are Pentecostal Christians who hold “strong views on homosexuality, stating that it is ‘against God’s laws and morals’”. The court refused to rule on the matter, effectively allowing the council to prevent the Johns from fostering. Should conservative Christians be allowed to foster children?

Read More »Who should be allowed to foster?

Nothing is like mother’s ice cream

The Icecreamists, an ice cream parlour in Covent Garden began selling a human breast-milk based ice cream last month, only to have it confiscated recently by Westminster Council in order to check that it was “fit for human consumption”. New York chef Daniel Angerer was reported as served human cheese (he didn’t, but see his blog for the recipe). He was advised by the New York Health Department to stop, since although there were no departmental codes forbidding it they claimed “cheese made from breast milk is not for public consumption, whether sold or given away”. What is it exactly that is disturbing with a human milk ice cream or cheese? And are there any good reasons to hinder selling it?

Read More »Nothing is like mother’s ice cream

Can forced sterilization ever be ethical?

A British court still needs to decide whether to authorize the sterilization, at her mother’s own request, of a mentally disabled woman (see e.g. here and here). Reading only the headlines and initial paragraphs of the news entries devoted to the case, one might become worried that we are seeing here a resurgence of an abhorrent practice that gained much favour in the first half of the 20th-Century, in countries like Germany or the United States: i.e. the compulsory sterilization of the mentally retarded for eugenic purposes. However, it is important to look at the particulars of this case in order not to be misled. The 21-year old woman, referred to as P, is pregnant with her second child, and her mother (“Mrs. P”) says that they “can’t carry on supporting more and more children”. She also said that after the birth of her second child her daughter would have “a complete family” (a girl and a boy). But her mother is worried that she will soon fall pregnant again, in which case the child will have to be given away for adoption – something that her daughter, she says, is unable to understand, yet an outcome that would cause her much distress were it to happen.

Reacting to the case, bioethicist George Annas, from Boston University, commented that “this is eugenics if they are doing this because she’s mentally disabled. This decision needs to be made based on the person’s best interests, not the best interests of society or her caregivers.”

Read More »Can forced sterilization ever be ethical?

Nazi Eugenics Returns to Germany: The Paradox of Eugenics

The prestigious scientific journal, Nature, reports that Germans are poised to allow genetic testing of embryos for serious genetic disorders. This follows a recent judicial judgement that genetic testing of embryos for serious disorders did not fall under German laws that ban destruction of embryos. Now,

The Leopoldina, Germany’s national academy of sciences, has published a report strongly recommending that preimplantation genetic diagnosis of early embryos be allowed by law when couples know they carry genes that could cause a serious incurable disease if passed on to their children.

Read More »Nazi Eugenics Returns to Germany: The Paradox of Eugenics

Is it the thought that counts?

There was a jolly fire in the fireplace. The snow was falling outside the windows, to the delight of children and despair of transport planners. Aristotle sipped on the mulled wine, watching while Kant meticulously wrapped another jar of homemade mustard.

“Dear Immanuel, are you going to give all your friends mustard?”

“Everybody except Georg. He likes to mix it with ketchup; he says it makes a great synthesis. I don’t care much for that idea and I would hate to see it spread. He will get a writing style guide instead.”

“I guess for you it is the thought that counts, when it comes to Christmas presents.”

Read More »Is it the thought that counts?

Education is child abuse

By Charles Foster

I took my son to school this morning. And I’m wondering if that was evil.

Proponents of human cognitive enhancement are fond of saying that there is nothing very novel about their suggestions. There is no difference in principle, they say, between improving someone’s neural processing power by (for example) manipulation of the genome, and improving that power by education. It is a potent argument. Brains are very plastic things. Education increases the number of neuronal connections. You can see the effect of education with an electron microscope. Education produces change every bit as physical as the bruises produced by a violently abusive parent.

Read More »Education is child abuse