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Regulation

Preimplantation Genetic Screening: One Step Closer to the Perfect Baby?

Prospective parents will be able to screen embryos for almost any known genetic disease using a revolutionary “universal test” developed by British scientists, led by Prof Alan Handyside 
The £1,500 test, called karyomapping, which should be available as early as next year, will allow couples at risk of passing on gene defects to conceive healthy children using IVF treatment.  The “genetic MoT” will transform the range of inherited disorders that can be detected. Currently only 2% of the 15,000 known genetic conditions can be detected in this way. Not only can it test for muscular dystrophy, cystic fibrosis and Huntington’s disease, but it can be used for testing for the risk of developing heart disease, cancer, diabetes and Alzheimer’s in later life.

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The objections to assisted suicide are misguided

In a recent article in The Observer, philosopher Mary Warnock makes an eloquent plea for assisted suicide in relation to the case of Daniel James, a 23-year old rugby player from Worcester who requested to be helped to die after an accident at a training session last year left him paralyzed from the chest down, and whose parents helped to fulfill his request by travelling with him to an assisted suicide clinic in Switzerland. Warnock has many sound points to make on this issue, and I will not repeat all of them here. Rather, I will consider some of the arguments that those opposed to assisted suicide have presented in response to that particular case.

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Why the cheating objection to smart drugs doesn’t work

The BBC reports today
that increasing numbers of people are using prescription drugs like Ritalin—intended
as a treatment for children with attention deficit hyperactivity disorder
(ADHD)—to boost alertness and brain power.  Reports of the increasing popularity of ‘smart
drugs’ are synonymous with concerns about cheating (see here,  here, and here):
surely, the worry runs, taking drugs that help you do well at college is
equivalent to bribing your examiners into awarding you high marks? Those who take cognitive enhancement drugs,
just like those who bribe their examiners, are better placed to beat their
peers in the competition for the best educational qualifications and jobs, and
so cognitive enhancement is unfair. In
this case, shouldn’t cognitive enhancement be banned in schools and colleges?

Read More »Why the cheating objection to smart drugs doesn’t work

Identifying Sperm Donors, Genetic Privacy and Public Benefit: How to Have Your Cake and Eat It Too

A story in today’s Daily Mail reveals some of the harms experienced by children born to sperm donors. Since 2005, children born to sperm donors have had access to the identity of the man who donated sperm that created them. But prior to that point, donors were not required to disclose their identity. These children are often susceptible to diseases which have a genetic component, like diabetes or bowel cancer, and are unaware that they have such susceptibility. They also sometimes describe a sense of not fitting in with their family, having a different personality and character. Many desperately and vainly seek out their biological fathers.

One problem is that historically, donors gave sperm on the condition of anonymity. Thus they consented believing they would remain anonymous. This was the case in Victoria, Australia, where similar problems have been reported.  The option to remain anonymous was thought to be necessary to ensure a supply of willing donors, and to protect donors from financial and other claims made by their offspring.  But now we place greater value on the genetics of the donor and many children wish to know their biological father and his genes.

So donors have a legitimate interest, based on the conditions of their consent and self interest, in protecting their anonymity. How is this interest to be weighed against the interests in their offspring accessing knowledge about them?

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Publishing Negative Research Results

Ben Goldacre, in the Guardian this weekend, noticed the range of headlines on health and health risks that are to be found in the media. He mentions, among others, the rise of ‘manorexia’, the failure of water to induce weight loss and the dangers of antibiotics to prevent premature birth. I found a couple more: It turns out that dark chocolate can reduce the risk of heart attacks, vegetable rich diets and in particular vegetables like broccoli reduce the chance of heart disease and stroke and turmeric, the spice that makes curries yellow, can reduce the size of hemorrhagic stroke.

It’s quite striking what research is done!

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Needles in Haystacks and Individuals in DNA Pools

An article recently published on PLOS Genetics showing that (and how) individuals can be identified by their DNA within large publicly accessible pools DNA has led to genetic data being removed from publicly accessible websites by the NIH and the Wellcome Trust. As one geneticist quoted in Science put it “We have a false sense of security with pooled data.”

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‘Anyone who thinks the Large Hadron Collider will destroy the world is a t**t.’

This week is Big Bang Week at the BBC, with various programmes devoted to the switch-on of CERN’s Large Hadron Collider (LHC) on Wednesday morning.  Many of these programmes are covered in this week’s issue of the Radio Times—the BBC’s listings magazine—which also features a short interview with Professor Brian Cox, chair of particle physics at the University of Manchester.  Asked about concerns that the LHC could destroy the earth, he replies:

‘The nonsense you find on the web about “doomsday scenarios” is conspiracy theory rubbish generated by a small group of nutters, primarily on the other side of the Atlantic.  These people also think that the Theory of Relativity is a Jewish conspiracy and that America didn’t land on the Moon.  Both are more likely, by the way, than the LHC destroying the world.  I’m slightly irritated, because this non-story is symptomatic of a larger mistrust in science, particularly in the US, which includes things like intelligent design. [… A]nyone who thinks the LHC will destroy the world is a t**t.’ (Final word censored by Radio Times.) [1]

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Abortion is No Place for the Law

Victorian politicians are debating how to reform law on abortion. In Victoria, as in other states, abortion remains a crime. This is inconsistent with what happens. There are nearly 100 000 abortions every year in Australia.

The Victorian government will decide between 2 Models. According to Model B, abortion will be available on request until 24 weeks of pregnancy, but after that point 2 doctors must agree that it is indicated. Doctors who fail to comply with the law would receive professional and other sanctions. On Model C, abortion is available on request all through pregnancy. Premier Brumby and a majority of politicians support Model B.

Why is the imposition of sanctions on doctors who provide abortions so attractive? Firstly, abortion is an undesirable means of birth control. Most people would prefer to find other ways of not having unwanted children. Secondly, many people believe that as the fetus grows, and looks more like a baby, its moral status increases. After 24 weeks, some fetuses are even capable of living in intensive care units, outside the womb, as extremely premature newborns.

Despite its superficial attractiveness, Model B is deeply morally flawed. According to Model B, the moral status of the fetus, and whether it is kept alive or aborted, depends on the judgement of 2 doctors. Their decisions will usually be based on whether there is a disease or disability present. But this implies that fetuses with disabilities have less of a right to life than those which do not have disabilities. This is discrimination against the disabled and those with diseases. We would not allow 2 doctors to kill a child just because it had spina bifida. Why would we think the presence of spina bifida should change the moral standing of a fetus? Doctors can withdraw medical treatment leading to the deaths of their patients, but only when the patient’s life is no longer worth living. This is not the case in virtually all abortions.

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Silicon dreams: digital drugs and regulation

A new worry has hit parents: digital drugs. The idea is that sounds can affect brain states, so by listening to the right kind of sounds desired brain states can be induced – relaxation, concentration, happiness, PMS relief or why not hallucinations? Apparently "idosers" walk around high on sound. Just the right thing for a summer moral panic – kids, computers, drugs and pseudoscience.

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Would you rather be invisible or be able to fly? (Or: are you a sneaky superhero?)

If, like
me, you were one of the kids whose preferred superpower was invisibility, you
may soon be in luck. The BBC reports
today that US scientists have
created a material that could one day be used to make people and objects invisible. The material, which has so far been created
only on a microscopic scale, neither absorbs nor reflects light,
meaning that anyone looking at an object covered in it would see what
lies behind the object rather than the object itself. It’s likely that such technology will be
snapped up first by the military, but perhaps, in years to come, invisibility
cloaks will be available to all.

For some,
the idea of being invisible is distasteful. Being invisible means being able to get away with anything – and
why bother to act morally when you can be sure that you’ll never be caught
out? In this case, would a world full of
people who can turn invisible at the drop of a hat be a world full of thieves,
cheats, and sneaks?

Read More »Would you rather be invisible or be able to fly? (Or: are you a sneaky superhero?)