Melissa and Brad’s story is a heart wrenching one. Having to sell the family car in order to have a healthy baby.
From the government’s perspective, this is a bizarre situation. The care of a baby born with cystic fibrosis can cost over half a million dollars or more. Melissa and Brad both saved the government, and all of us, quite a lot, perhaps over half a million dollars. Yet they had to spend tens of thousands of dollars. They have, in effect, donated several hundred thousand dollars to the Australian public. Thanks Melissa and Brad.
This situation is profoundly immoral. People should have children born without disabling genetic disorders and they should be given support and encouragement to do so. If someone said to a person having IVF, “ We have two viable embryos, one is healthy and the other has a major disease. Would you like us to flip a coin, choose the healthy one or choose the one with the disease?” What should you do? What is the right thing to do?
Read More »A Tale of a Designer Baby and Distributive Injustice