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Disability, Chronic Conditions and Rehabilitation

Can forced sterilization ever be ethical?

A British court still needs to decide whether to authorize the sterilization, at her mother’s own request, of a mentally disabled woman (see e.g. here and here). Reading only the headlines and initial paragraphs of the news entries devoted to the case, one might become worried that we are seeing here a resurgence of an abhorrent practice that gained much favour in the first half of the 20th-Century, in countries like Germany or the United States: i.e. the compulsory sterilization of the mentally retarded for eugenic purposes. However, it is important to look at the particulars of this case in order not to be misled. The 21-year old woman, referred to as P, is pregnant with her second child, and her mother (“Mrs. P”) says that they “can’t carry on supporting more and more children”. She also said that after the birth of her second child her daughter would have “a complete family” (a girl and a boy). But her mother is worried that she will soon fall pregnant again, in which case the child will have to be given away for adoption – something that her daughter, she says, is unable to understand, yet an outcome that would cause her much distress were it to happen.

Reacting to the case, bioethicist George Annas, from Boston University, commented that “this is eugenics if they are doing this because she’s mentally disabled. This decision needs to be made based on the person’s best interests, not the best interests of society or her caregivers.”

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All between the ears? Homeopathy and experimental treatments for chronic fatigue syndrome

On Monday,  Belgian endocrinologist Francis Coucke appeared before the ‘Orde van Geneesheren’, a national body responsible for enforcing standards within the medical profession. Dr Coucke risks a two year suspension from the profession because his treatment (gamma globulines and home TPN) of patients with the chronic fatigue syndrome (CFS) has been deemed non-scientific: it has not been proven to work in large studies. Last year, he and a neuropsychiatrist colleague were required to pay a 635,000 euro fine for prescribing medicines not licensed for CFS to CFS patients. The fine was imposed even though special authorization for the prescriptions had been granted by the medical advisor to the national healthcare service.
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Predictors of Alzheimer’s vs. the Hammer of Witches

Matthew L Baum

Round 1: Baltimore
I first heard of the Malleus Maleficarum, or The Hammer of Witches, last year when I visited Johns Hopkins Medical School in Baltimore, MD, USA. A doctor for whom I have great respect introduced me to the dark leather-bound tome, which he pulled off of his bookshelf. Apparently, this aptly named book was used back in the day (published mid-1400s) by witch-hunters as a diagnostic manual of sorts to identify witches. Because all the witch-hunters used the same criteria as outlined in The Hammer to tell who was a witch, they all –more or less- identified the same people as witches. Consequently the cities, towns, and villages all enjoyed a time of highly precise witch wrangling. This was fine and good until people realized that there was a staggering problem with the validity of these diagnoses. Textbook examples (or Hammer-book examples) these unfortunates may have been, but veritable wielders of the dark arts they were not. The markers of witchcraft these hunters agreed upon, though precise and reliable, simply were not valid.
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Lethal Ethics: When Philosophical Distinctions Kill

by Julian Savulescu

Teresa Lewis died on the 24th of September after being a lethal injection at the Greensville Correctional Centre in Virginia. The 41-year-old was convicted of plotting to kill her husband, Julian Lewis, and her stepson, Charles Lewis. She persuaded two men to carry out the murders in return for sex and money. The two men received life sentences. The execution went ahead in spite of protests from lawyers, celebrities and others who argued that she should have been given clemency because of her low IQ. Under US law, anyone with an IQ of 70 avoids the death penalty. Lewis was judged to have an IQ of 72.

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Is your mobile phone part of your body?

by Rebecca Roache

The Frontline reports that sensors carried on the body of mobile phone users could soon be used to boost the UK’s mobile phone network coverage.  If only half of the 91% of the UK population who owns a mobile phone carried such sensors, then nearly half of the UK population would become part of a ‘body-to-body’ mobile phone network.

When technology becomes as wearable and ubiquitous as this, it raises some interesting questions about what sort of things people are, and about the division between the body and the surrounding environment.  What, after all, is a body?  At first glance, a person’s body is that mass of flesh, blood, and bone that we point to when we point to him or her: all very simple and straightforward.  Things get more complicated when we consider someone who has received an organ transplant.  Does a transplanted organ become part of the body of the person who receives it?  I would say so.  Assuming that the transplant is successful, it functions just like the organ it replaces; and an injury to the transplanted organ would be considered an injury to the recipient.  What about artificial devices that replace or supplement organs, like cochlear implants: do these count as body parts too?  I would imagine that most of us would be less willing to view such things as body parts.  However, if transplanted organs are to count as parts of the recipients’ bodies, refusal to accept cochlear implants as body parts seems mere prejudice.  Both enable the recipient’s body to perform a familiar and normal bodily function; and whilst a transplanted organ is – unlike a cochlear implant – undeniably a body part, it is pre-transplant no more a part of the recipient’s body than a cochlear implant.  So, perhaps we should consider cochlear implants to be body parts too.  If we accept something like a cochlear implant as a body part, though, what else might we feel bound to include?  What about less permanent replacement body parts, like false teeth and prosthetic limbs?  Tools that are not intended to replace body parts, but which nevertheless enable certain people to perform something like a familiar and normal bodily function, like wheelchairs?  Tools that enable people to perform functions that are not familiar and normal bodily functions, like pencils and screwdrivers?  Where do we draw the line between the body and the surrounding environment?

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Break my bones, but don’t let me die! Should doctors provide ‘futile’ CPR?

by Dominic Wilkinson

Two recent cases in a Toronto hospital illustrate a dilemma that hospital doctors face all too frequently. What should they do if patients or their representatives insist on treatment that the doctor believes would be futile? Should they just go along with the patient despite their misgivings? Alternatively, should they unilaterally withhold treatment if they feel it would be inappropriate to provide it?

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Between Life and Death…

A powerful BBC documentary, “Between Life and Death”, screened this evening on BBC One. The documentary (which can be viewed online for the next week in the UK) examined the life and death decisions made for critically ill patients with severe brain injury. Neuro-intensive care provides a way to interrupt the process of dying for such patients. But it raises difficult questions for medical staff and for families about the wishes of patients, the wishes of family members, and about uncertainty. Should treatment continue at the risk of the patient surviving in a severely impaired state? Or should patients be allowed to die, with the risk that perhaps if treatment had continued they may have recovered?

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The Costs of a Right to Demand Treatment

by Bridget Williams

Who has the right to decide when life prolonging treatment
should be withdrawn? Should doctors have the right to refuse to use costly and
scarce resources to continue to treat a permanently unconscious, dying man? Is
there a limit to the medical resources we can reasonably claim for ourselves
and our families when there are others who have the potential to receive much
greater benefits from those same resources?

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