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Ethics

Burma, Myanmar and the Myth of Objectivity

by David Edmonds – twitter @DavidEdmonds100

Since my last blog post, there has been a decision within the BBC “to start to move” to calling ‘Burma, ‘Myanmar’.

Burma has always been an interest of mine because it was the big story in the first few weeks when I began in journalism.  Aung San Suu Kyi’s husband (now deceased) lived in Oxford and when the demonstrations broke out in Burma in September 1988 I would deliver news wires to him: in those pre-internet days he had virtually no other means of finding out what was going on.Read More »Burma, Myanmar and the Myth of Objectivity

Let’s Talk About Death: Millennials and Advance Directives

Sarah Riad, College of Nursing and Health Sciences, University of Massachusetts Boston

Melissa Hickey, School of Nursing, Avila University 

Kyle Edwards, Uehiro Centre for Practical Ethics, University of Oxford

As advances in medical technology have greatly increased our ability to extend life, the conversation on end-of-life care ethics has become exceedingly complex. With greater options both to end life early and extend it artificially, advance directives have arisen in an effort to preserve patient autonomy in situations in which he or she becomes incapable of making a medical decision. However, most people—especially young adults—do not think to plan for such moments of incapacity and the potentiality of an untimely death. With a youthful sense of invincibility comes a lack of foresight that prevents us from confronting these issues. The reality is that unexpected events happen. When they do, it is often very difficult to imagine what a person would have wanted and make medical decisions accordingly on his or her behalf. In this post, we suggest both a transition from action-based to value-based advance directives and an interactive website that would make the contemplation of these issues and the construction of a value-based advance directive appealing to and accessible for Millennials, the 20-somethings of today. Read More »Let’s Talk About Death: Millennials and Advance Directives

Safety First? How the Current Drug Approval System Lets Some Patients Down

Andrew Culliford, whose story is featured in the Daily Mail, is one of the estimated 7 in 100,000 people living with Motor Neuron disease, a progressive degenerative disease which attacks muscles, leaving those affected eventually unable even to breathe unassisted. For Andrew, a young father who has a severe form of the disease, it means a two to five year life expectancy.

Like Les Halpin and Jenn McNary, the mother of twins afflicted with a similar rare disease, he has a simple request: earlier access to medicines that might help improve or extend his life.

The US introduced a mandatory pre-approval process for pharmaceutical drugs after over 100 people were killed by an untested drug formulation . Today, each drug must go through a series of strictly controlled trials, including Phase 1 tests on healthy volunteers, followed by Phases 2 and 3 which test the drug and dosages on smaller and then larger patient groups. The process is estimated to cost $500 million per drug and to take 8 – 12 years.

The process is designed to ensure the efficacy of drugs has been scientifically demonstrated to a very degree of confidence, and to ensure that patient safety is sufficiently protected. In many ways it has been a triumph of science and regulation.

But it has been a failure for one small group of patients: those with rare, imminently lethal diseases, for whom there are no existing good treatments. Those who will die in less than 8 years. It is these patients who are asking to have access to untested medicines, and to avoid placebo controlled trials, where half the participants are given no drug at all. Les has proposed innovative methods of patient recording data. I have discussed this proposal previously on this blog , and in a joint paper with Les Halpin and clinicians.

Read More »Safety First? How the Current Drug Approval System Lets Some Patients Down

Can Facts Be Racist?

Here is the sequence of events.  1. Richard Dawkins tweets that all the world’s Muslims have fewer Nobel Prizes than Trinity College Cambridge.  2. Cue a twitter onslaught – accusing Professor Dawkins of racism.  3. Richard Dawkins writes that a fact can’t be racist.Read More »Can Facts Be Racist?

Would you hand over a moral decision to a machine? Why not? Moral outsourcing and Artificial Intelligence.

Artificial Intelligence and Human Decision-making. Recent developments in artificial intelligence are allowing an increasing number of decisions to be passed from human to machine. Most of these to date are operational decisions – such as algorithms on the financial markets deciding what trades to make and how. However, the range of such decisions that can… Read More »Would you hand over a moral decision to a machine? Why not? Moral outsourcing and Artificial Intelligence.

Not all philosophers are equal

Not all ethical issues are equally important. Many ethicists spend their professional lives performing in sideshows.

However entertaining the sideshow, sideshow performers do not deserve the same recognition or remuneration as those performing on our philosophical Broadways.

What really matters now is not the nuance of our approach to mitochondrial manipulation for glycogen storage diseases, or yet another set of footnotes to footnotes to footnotes in the debate about the naturalistic fallacy. It is: (a) Whether or not we should be allowed to destroy our planet (and if not, how to stop it happening); and (b) Whether or not it is fine to allow 20,000 children in the developing world to die daily of hunger and entirely avoidable disease  (and if not, how to stop it happening). My concern in this post is mainly with (a). A habitable planet is a prerequisite for all the rest of our ethical cogitation. If we can’t live here at all, it’s pointless trying to draft the small print of living.Read More »Not all philosophers are equal

I’m Too Unsexy For My Shirt

Follow David on Twitter @David Edmonds100

Thinking only of your career prospects now, is it better to be sexy or unsexy?  This person was said to be too sexy and lost her job.   But at Abercrombie & Fitch the allegation is that you can’t get a job unless you’re good looking.  The A&F image of glamour has helped the company make enormous profits:  I once bought a T-Shirt for a godless child at an A&F store, to pay for which I had to sell my wardrobe. Read More »I’m Too Unsexy For My Shirt

Press Release: Ethical Meat

On Monday, London will see the world’s first artificial meat burger cooked and tasted, by Professor Mark Post of Maastricht University. Artificial meat stops cruelty to animals, is better for the environment, could be safer and more efficient, and even healthier. We have a moral obligation to support this kind of research. It gets the… Read More »Press Release: Ethical Meat

The Law on Assisted Suicide: Time for the Buck to Stop

Yesterday, three judges representing the England and Wales Court of Appeal unanimously dismissed a challenge to a High Court ruling that Parliament, rather than judges, should decide whether the law on assisted dying should change.  The challenge was mounted by Paul Lamb (who is paralysed from the neck down and wishes to end his life, but is physically unable to do so) and Jane Nicklinson (the widow of Tony Nicklinson, a sufferer of locked-in syndrome who unsuccessfully appealed to the High Court to change the law on assisted suicide prior to his death).Read More »The Law on Assisted Suicide: Time for the Buck to Stop

What to do with the Redundant Churches After the Demise of Religion?

Some weeks ago I attended a lecture by Daniel Dennett at the Oxford Union on religion. As expected, it was a lively presentation that predicted the demise of religion. However, one matter that started me thinking was how Dennett concluded his lecture: he ended by pondering what we might do with all the redundant places of worship once his prophecy was fulfilled. His suggestion was that they might satisfy a secular purpose, as places where the community might come together to address the novel challenges of the modern world. I started me thinking as I wondered whether a belief in religion might be better than atheism for attaining this, or any other, goal. Some, such as Jonathan Haidt (The Righteous Mind (2012)) have suggested that religion is a particularly effective force for bringing people together.Read More »What to do with the Redundant Churches After the Demise of Religion?