Ethics

Heritable Human Genome Editing Can Cure or Prevent Diseases

By César Palacios-González

@CPalaciosG 

More than a year after the fallout from He Jiankui’s announcement to the world that he had edited human embryos in order to made them resistant to HIV, the debate on whether we should move ahead with heritable human genome editing has given no signs of slowing down. For example, just a couple of days ago the UK House of Lords was debating this issue, and the WHO’s advisory committee on genome editing is running a consultation on the governance framework that should rule over human genome editing. While there are many ethical questions surrounding human genome editing, there is a question that recently has gained prominence: is heritable human genome editing therapeutic? Continue reading

The Right Not to Know and the Obligation to Know

By Ben Davies

Most people accept that patients have a strong claim (perhaps with some exceptions) to be told information that is relevant to their health and medical care. Patients have a Right to Know. More controversial is the claim that this control goes the other way, too. Some people claim, and others deny, that patients also have a Right Not to Know.

A number of considerations (harm to the patient; autonomy; privacy) have been marshalled on either side of this debate over the past few decades (e.g. Laurie 2004; Robertson and Savulescu 2001; Herring and Foster 2012; Takala 2019). In this post, I focus on a distinct argument and its apparently unassailable logic. This is the view that a comprehensive Right Not to Know cannot be justified because in many cases a patient’s ignorance will likely lead harm to third parties (Council of Europe 1997; Rhodes 1998; Harris and Keywood 2001).

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Responsibility, Healthcare, and Harshness

Written by Gabriel De Marco

Suppose that two patients are in need of a complicated, and expensive, heart surgery. Further suppose that they are identical in various relevant respects: e.g., state of the heart, age, likelihood of success of surgery, etc. However, they differ on one feature: for one of these patients, call her Blair, the need for the heart surgery is due to her lifestyle (suppose she was a smoker), whereas the other, Ingrid, has not had this lifestyle, nor any other that would lead to the need for the surgery.

Some people think that:

  1. We can be responsible and blameworthy for our actions and their consequences.

Some of those people also think that:

  1. We can, or should, take this into account when making decisions about how to distribute healthcare resources.

For the purposes of this blog post, let’s assume 1 and 2 are true. Commonly, it is thought that, in order to be blameworthy for something, one must be responsible for it. Further, it is commonly thought that, whatever the appropriate response is to blameworthiness for something or other (assuming that there is an appropriate response), it will be negative in some sense or other. Now further suppose that Blair is blameworthy for her illness. Given 1 and 2, this fact about Blair, combined with the fact that Ingrid is innocent with regard to her illness, suggests that, at least in some contexts, we should treat them differently (or at least it would be permissible to do so). Call a healthcare policy that adopts, and reflects, 1 and 2 a Responsibility-Sensitive Policy, or RSP for short.

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Mutilation or Enhancement? What is Morally at Stake in Body Alterations

By Brian D. Earp (@briandavidearp)

 

Those who follow my work will know that I have published a number of papers on the ethics of medically unnecessary genital cutting practices affecting children of all sexes and genders (a partial bibliography is at the end of this post). When my writing touches on the sub-set of these practices that affect persons with characteristically female sex-typed genitals, I have on occasion received some pushback for using the term ‘FGC’ for female genital cutting rather than ‘FGM’ for female genital mutilation (though I have also received words of appreciation, so, I cannot please everyone).

A recent instance of such pushback came from a respected colleague in response to a forthcoming paper of mine in Archives of Sexual Behavior, in which I explicitly argue against the use of ‘mutilation’ in certain contexts, as there is evidence that such stigmatizing language may have adverse effects on the very people who are meant to be helped. The paper, “Protecting Children from Medically Unnecessary Genital Cutting Without Stigmatizing Women’s Bodies: Implications for Sexual Pleasure and Pain” is available as a pre-print here.

Given that this terminological issue is likely to keep coming up, I thought I would share parts of the reply I wrote to my colleague (lightly edited). I certainly don’t expect that everyone will agree with what I say below, but I hope it can shed some light on at least one plausible way of thinking about such difficult matters.

One last thing. In order to understand my reply, you need to know that my colleague argued that my use of ‘FGC’ rather than ‘FGM’ is disrespectful because it goes against the recommendation of the 2005 Bamako Declaration adopted by the Inter-African Committee (IAC) on Traditional Practices Affecting the Health of Women and Children. My answer is immediately below.

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Lying About Santa: The Sequel

Written by Ben Davies

Another Christmas, and another blog about the ethics of Christmas-based lying.

Around this time last year, Alberto Giubilini wrote a post about whether we should allow children to believe in Santa. Alberto was pretty scathing about some of the arguments in favour of Santa-based honesty, but I want to offer some ethical considerations in favour of this unpopular view.

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The Good Place, the Bad Place, and the Ugly Consequences

written by Gabriel De Marco

I recently started to watch The Good Place again, a sitcom by NBC which takes place in the realm of the supernatural. The show has taken us to the good place (somewhat like heaven, where good people go after they have shuffled off their mortal coil), the bad place (the opposite of the good place), and a few others. Although the show is mainly a comedy, it manages to be funny while discussing many interesting ethical questions, and explicitly introducing a variety of ethical views and principles.

In this world there is a system, call it The System, that determines who goes to the good place and who goes to the bad place. The details of The System have never been fully clear, which turns out to be an important part of the show. Yet, there are some things we do know about how The System works. First, it assigns positive or negative points to actions. The points assigned to a given action seem to be a function of a variety of factors, including its use of resources, the intentions behind it, its effects on others. (It has also been suggested in a recent episode that if the only reason one performs an action is to make one’s points go up, one will not receive points). Whether a person ends up going to the good place is a matter of what their overall score is, and this overall score seems to be the sum of the points assigned to one’s actions.

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Bad Ads And Stereotypes

Written by Rebecca Brown

In June this year, the Advertising Standards Authority (ASA) brought into effect a ban on harmful gender stereotypes in advertising. In response to public outcry about adverts such as the 2015 ‘Are you beach body ready?’ campaign by Protein World, and growing discomfort with outdated depictions of gender roles in the media, the ASA undertook a project to consider whether existing regulation is fit for purpose. They concluded that “evidence suggests that a tougher line needs to be taken on ads that feature stereotypical gender roles and characteristics, which through their content and context may be potentially harmful to people.” (ASA, 2017: 3)

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The Psychology of Existential Risk: Moral Judgments about Human Extinction

Written by Stefan Schubert

This blog post reports on: Schubert, S.**, Caviola, L.**, Faber, N. The Psychology of Existential Risk: Moral Judgments about Human Extinction. Scientific Reports. [Open Access]

Humanity’s ever-increasing technological powers can, if handled well, greatly improve life on Earth. But if they’re not handled well, they may instead cause our ultimate demise: human extinction. Recent years have seen an increased focus on the threat that emerging technologies such as advanced artificial intelligence could pose to humanity’s continued survival (see, e.g., Bostrom, 2014; Ord, forthcoming). A common view among these researchers is that human extinction would be much worse, morally speaking, than almost-as-severe catastrophes from which we could recover. Since humanity’s future could be very long and very good, it’s an imperative that we survive, on this view. Continue reading

Elizabeth Anderson’s Uehiro Lectures: Lecture 3 – Communicating Moral Concern Beyond Blaming and Shaming

In Elizabeth Anderson’s final Uehiro lecture, she tackles what she takes to be the hardest problem facing our current political discourse – How can we overcome obstacles to communicating moral concerns in order to orient policy to important values (such as public health and justice)? This is a particularly difficult and intractable problem because it concerns our moral values; in overcoming this obstacle, there is thus a considerable degree of scope for disagreement, and judgments of the moral character of others based on their moral opinions. Over the course of the lecture, Anderson refines the diagnosis of this problem, and once again expresses optimism about overcoming the obstacles she highlights. This time she outlines how we might disarm the fear, resentment, pride, and contempt that is currently derailing our political discourse, and the virtues that we must develop to do so. You can find a recording of the lecture here.

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Elizabeth Anderson’s Uehiro Lecture Summary: “Can We Talk – Communicating Moral Concern In An Era of Polarized Politics” – Lecture 1: What Has Gone Wrong?

It is something of an understatement to suggest that we are living through turbulent times. Society today is characterised not just by deep divisions about how to address key social challenges of our time, but also on the emphasis that should be placed on evidence-based discussion of these issues, and the moral values that should guide national policies.

In this context, Elizabeth Anderson’s Uehiro lecture series, entitled ““Can We Talk – Communicating Moral Concern In An Era of Polarized Politics” could not be more timely. In the first of this three lecture series, Anderson offers a diagnosis of the problems that currently bedevil political discourse across the world. This first lecture sets the stage for the following two lectures in which she shall offer her own proposed solutions to the problems that she so vividly describes and analyses in this fascinating initial lecture. The remainder of this post shall briefly summarise the key points of the lecture – You can find a recording of the lecture here

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